Saturday, September 14, 2013

9/11 Babies and BCBA therapy

I'd love to hear if anyone else has had any experience with these two phenomena.  The first is the cohort of children born in 2001 or 2002 (give or take).  Their prebirth and early experience happened around the time of 9/11.  Whether they externalize or internalize, they seem to have trouble handling stress, and there are a high percentage of them, it seems.  I can remember how unsettled I felt at the time.  I wonder if their early experiences have made it hard for them to cope.  The second phenomenon is the use of a BCBA as a therapist, rather than a traditional therapist or a psychopharmacologist.  In the situation I've encountered, a previous therapist was seen as not giving explicit enough help in how to deal with specific situations, and a medication provider was seen as not considering the whole child.  Getting help for your child has become more complex, if nothing else.  Please leave a comment if you can enlighten me on either of these situations.

Thursday, July 4, 2013

The Shape of the Eye

This book is by George Estreich.  It tells about the first dozen years or so of his journey with Laura.  He makes a very good argument for just thinking of her as Laura, as opposed to a child with Down Syndrome, or a Down Syndrome child, or a child with Down's Syndrome, or anything other than Laura.  It would be worth reading if it only told about their lives, but it also has some good food for thought.  He hopes that it will come that we have no more need or desire to mention how she is different in her number of chromosomes than in her hair color.  I couldn't put the book down ( I assume I'm able to say that if I ate supper between the time when it came in the mail and when I finished it).  There is interesting information about Dr. Down, the Special Education process, and what the extra chromosome does (effect how proteins are manufactured in the body).  There was a short passage on the meeting after the School Psychologist tested her.  Here's a quote: "I knew nothing about Down syndrome except that it was bad, and that it meant Laura was different from me. I no longer believe the first - Down syndrome is simply Laura's way of being human.  As for the second: Laura is different, but the differences are superficial.  This may seem an odd assertion, since the extra chromosome pervades her, and its effects texture our days.  And yet these altered forms, eye and face and word, have come to contain and absorb what I know of love.  Or love learned to alter itself, to accommodate the forms.  She is no less my daughter, no less a person, for having an extra chromosome."

Sunday, June 16, 2013

DSM Wheel

DSM-5 is here, and praise is a little hard to find.  I would use one of my favorite cartoon lines, spoken by one Eskimo to another with the Northern Lights in the background, "It's not Broadway, but it's what we've got."  I use the framework in my attempts to understand the factors (internal and external) that are leading to problem behaviors for elementary school students and others.  How the students can be helped to minimize the disruptions which accompany the behaviors is a next step; understanding the behaviors is key.  I use my graphic organizer to remind myself of the important possibilities for diagnoses.  Any condition for which the person meets the criteria can be checked (for the diagnoses on the left) or shaded in according to how strongly the diagnosis applies for the diagnoses that "made" the circle on the right.  All diagnoses are not listed, but all categories of diagnoses should be included.  I'd be happy to hear from anyone that believes that a category has been missed, or that an additional specific condition should be named.  For me, the sections that have been most helpful so far are those on Specific Learning Disorder, Major Depressive Disorder, and Autism Spectrum Disorder.  What I don't see is an example of everything that is needed for a "complete" diagnosis.  It can't be listing the five axes, as they no longer exist!  Can anyone point me to a source that tells what you need for a written diagnosis, which covers all the bases?